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Travel Therapy

At the end of April it will be a year since we first met with a fertility specialist. This year, like any other, has had its ups and downs. I can’t claim that trying to conceive has been all fun and games, but this year has not been exclusively about us trying to get pregnant. At times though, it did feel as though our lives revolved around one all-encompassing goal. We learned that that approach would not work for us and could potentially lead to difficult series of disappointments. We seem to have stumbled on the perfect remedy, travel therapy.

There is nothing like a brief respite from all things relating to infertility: no doctors, no daily blood tests, no ultrasounds, no injections, and most certainly no  talk of trying to get pregnant. Most of the time this can be achieved by simply deciding to take a month or two off.  However, I have discovered that the cause is furthered by hopping on a plane and escaping it all. It is just my luck that the option has presented itself a few times this year.

Two weeks before Passover we learned that our first round of IVF did not take. I don’t  think that I really expected it to be successful (a future post will deal with the full 5 days for which I was pregnant). The whole process left me drained and I needed to regroup before starting again.

Tommy’s parents and grandparents suggested that we come to Budapest for the holiday. I could smell the aroma of my mother-in-law’s culinary talents and  my head filled with images of us riding bikes through Margaret Island along the Danube. It did not take long for us to accept the invitation. While the 6 inches of snow has kept us far from the Danube, there is no doubt that the trip has served its purpose.

Like most vacations it also proved to hold a bit of the unexpected. Tommy’s parents and grandparents appreciated the spirit that we brought to the Seder (I am rarely complemented on my singing).The absence of children could not be ignored when I recited the four questions. At the end of the evening, Tommy’s 90 year old grandfather commented that it had been a very long time since he had been to such a vivacious Seder. It seems that the combination of the Holocaust and Communism drained Hungary of its Jewish energy and vibrancy. That evening, Tommy (with the help of his talented wife) returned his grandfather to his own heritage. It was a powerful moment in which I realized the potential that I have to teach a future child, but also to learn and grow from the next generation.

At some point during the course of the fertility treatments I began to focus on the process and distanced myself from its purpose. That evening, watching Tommy with his parents and grandparents, I reconnected with our hopes to one day have a similar experience with our own children and grandchildren.

Uncategorized

Ill-informed

Not one ounce of my time or energy was wasted on the cysts between the months July and December 2010. Instead, Tommy and I spent most of our time preparing for the wedding. When the big day arrived we were ready to cherish the moment. We had a wonderful time and as the celebrations concluded we headed to Budapest so I could acquaint myself with  Tommy’s  hometown and his extended family. I fell in love with Tommy’s relatives, the beautiful city of Budapest and its culinary delights. My Hungarian improved ever so slightly to the point that I was fully capable of commenting on the weather, nagyon hideg.

With the arrival of the new year, I decided it was best to reconnect with the doctor who had given me a second opinion. I did not want to return empty handed, so I made sure that I went for the ultrasound (which could only be scheduled for the insane hour of 7:00 am) and the blood test.  The ultrasound confirms the type of cysts and their sizes. The blood test would measure the amount of CA 125 in my blood and if I never again have to hear about this protein it will be too soon.

The doctor’s office was conveniently located near some nice restaurants, so I scheduled that the appointment for a Thursday evening and figured that Tommy and I deserved a nice dinner after a long week of work. That particular work week turned out to be quite short as far as I was concerned. I was laid off on Monday and while I was not all that disappointed about the prospect of having a few months off, I can’t pretend that it didn’t sting. In Israel, being laid off (or fired)  is a process that involves multiple meetings over a number of days. By the end of that week all I could think of was going home and opening a bottle of wine.  This Dr.’s appointment was the only thing between me and a merlot.

I sat across from the doctor who told me it was a good thing that I came in because he would have called me with disturbing news after reviewing my blood tests – this guy had an unparalleled bedside manner. He printed out an order for me to be hospitalized and directed me to have the cysts removed immediately. Apparently,  my CA 125 indicated that they could become cancerous. My face must have gone white and he oh so comfortingly explained that he was not saying that I had cancer, at least not yet – grand slam for that bedside manner! I asked him if this would hurt my chances of being able to have a baby and he told me cancer was a far more serious problem. Thanks!

I walked out in shock, I was completely unprepared for this news. What the hell was going on? I felt as though nearly every aspect of my life was crumbling to the ground. I could handle loosing my job and I knew that Tommy and would face infertility together, but the threat of cancer was too much.

I dialed Tommy’s cell and of course, it went straight to voice mail. So I redialed about a million times but his phone must have been off.  Tears started streaming down my face and I walked and walked and walked and hit redial every 30 seconds. This was not the first time that I had wandered through the streets of Jerusalem crying, there is a guy out there who once drove me to tears but it was nothing that a few doses of scotch couldn’t fix.  This time I was lost, the familiar Jerusalem streets were suddenly a maze and I could not figure out how to get home.

Finally, Tommy answered his phone

“Tobyka, I ‘m sorry my battery died, what’s wrong?’

I couldn’t even talk, so I got into a cab and told Tommy to meet me outside. The cab pulled up and there he was waiting for me. I knew that I was not in this  alone. That whatever was ahead, he would be there – ideally with a fully charged cellphone.

We decided to take Dr. Google’s advice and we looked up CA 125 and discovered that endometriosis is one of a number of conditions that can cause an elevated CA 125. We spent the rest of the night on the phone with various friends in the medical field and agreed the cysts should be removed, but I did go to sleep in a much calmer state of mind – I finally got my wine.

Uncategorized

Day off, psych!

Today was going to be a great day. It is  the International Day for Working Women. The university gives me about 3 hours off and I had plans that included a nice lunch and maybe some errands.

My plan was to go to the fertility clinic to have the regular blood and ultrasound that are standard for all fertility treatment and then go to work for an hour or two.  The blood went fine and I patiently awaited my turn for the ultrasound.
One hour later, the technician tells me that her ultrasound is not able to see everything necessary and I will need an additional test.  She calls the department  to get me an appointment and the secretary informs her that I have a long wait ahead of me. That is not a good sign anywhere but in Israel when they are so upfront about it you should multiply your expected wait time by a factor if ten! So much for a few hours off, good thing I have a smartphone to keep me entertained!
So it goes:
Toby plans, God laughs! Or at least someone does.

Disease

Second Opinion

May 31st, 2010 was my last day on the job in Haifa and the  very next day, I started my new job in Jerusalem. I took no time off between the jobs; this was not one of my better decisions but I had only myself to blame. There is never an excuse for not spending  at least one day fully in pajamas between jobs; lesson learned.

My move signaled that our wedding planning was now in full swing. A couple of weeks later Tommy’s parents arrived in Israel from Budapest – that was the first time that I met them – and my parents flew in from Philadelphia. Tommy and I wanted our parents to meet one another before the wedding and an engagement party was the  perfect excuse (if you are asking yourself, ” hey, why wasn’t I invited?” you can relax, it was family only). Of course I was a little afraid that their first meeting would go something like this:

Amazingly, we discovered that we had the essential component to the perfect in-law relationship, a total  language barrier. Sure, at the end of the visit Tommy was sick of being a Hungarian-English translator, but that is a small price to pay for a total lack of minor disagreements that can become a whole lot of stress.  In most cases, Tommy would translate any bit of Hungarian to an English, “very good”. Of course, I had enough Hungarian to realize that the only thing my parents ever said to his parents could be summed up in two Hungarian words, “nagyon jó!” Everyone had a great time and we were all excited to celebrate in November.

There was one small hitch: I went ever so slightly bridezilla when my sister in the US called my parents during their visit to inform them that she was pregnant and would be 8 + months pregnant at the wedding! All I could think about was the possibility that she would go into labor the day of MY wedding and steal the spotlight. I also knew that there was a chance that she would not be able to attend the wedding. I was annoyed and irrational and in the end everything worked out wonderfully. My sister came to the wedding and her adorable son was born a month later.

In retrospect, I have to admit that what bothered me the most about my sister getting pregnant was that I had just been told that I would likely have difficulties in that area. In the midst of all the celebrating, I was somewhat worried that we would be in for a struggle when it came to starting a family. Tommy and I talked about the possibility quite a bit and we decided to take things as they come.  At the moment we would take the opportunity  to celebrate the engagement, wedding and time with our family.

Our parents went home and I made an appointment with a gynecologist; I asked around for recommendations from friends but figured he had to be better than Dr. Google. I showed him the images from the ultrasound and the new doctor could see all of Dr. Google’s notes. I explained that I needed a second opinion. After reviewing everything he gave me one piece of advice, “If a doctor ever tells you that you need to have immediate surgery, make sure that a different doctor actually opens you up”.  He may have overstated it as a hard-and-fast rule, but the point was well taken; my inclination to get a second opinion had been validated. Yes! This doctor wanted to monitor the cysts for a bit, especially since I was not in any pain. He told me to come back after the wedding and he will order new ultrasounds and blood tests. I left the appointment relieved and ready to enjoy the exciting few months that lay ahead.

Uncategorized

Don‘t Panic

If anyone ever needs to know, it is no problem going through airport security with a syringe and needle. I have now done it in both Israel and Italy. The Frio is keeping the medicine nice and cool.
Now I get to relax and enjoy my vacation.

Uncategorized

Mission Impossible

There was a point when it  became clear to me just how all encompassing infertility treatments can become. A nurse was explaining  the particulars of a test and told me where I needed to be and exactly when to be there. Of course, running through my mind was all the meetings that I would have to reschedule at work. “No, no,” she explained, “women move everything around in order to be at  these tests and treatments.” I slowly realized that infertility treatments were going to be my second job.

However, I have a talent for multitasking, so armed with a super smartphone, this should be no problem. The past month, however, went  far beyond multitasking and felt more like an episode of Mission Impossible 

My mission, should I choose to accept it,  is to get an injection on a certain day in January, no problem.  The twist is that I need to complete my mission while abroad on vacation. Tommy and I bought tickets at the end of October; we decided to book after we received the news of another unsuccessful IUI. Our approach to infertility has been to focus on all that we have and not what is missing, so not being pregnant offered us the perfect opportunity to travel. Tommy ended up bailing when he started a new job – yay for Tommy, sad for me. My treatments require that I receive an injection, from a nurse, every 4 weeks, but nothing was going to keep me away from these weddings in the US.  Infertility cannot dictate my life.

Yes, I would I accept this mission, so I began to ask some questions. Was this a shot that I needed to receive from a nurse? Turns out that a friendly nurse was able to teach me how to prepare and administer the injection for myself. Would my insurance company cover the purchase of two injections in the same month (I would need to buy the medicine in Israel and bring it to the US)? Yes, provided that I submit a note from my doctor. I was on a roll.

Then came the tricky part, would I be able to transport the syringe (which needs to be refrigerated) along with a needle on the airplane? The airline was of little help in solving that one, and my regular pharmacist was only slightly more helpful. I knew that I could not possibly be the first person to face this problem. Diabetics travel all the time. All I needed was some way to keep the medicine cool for about 24 hours. Yet pharmacy after pharmacy failed to offer any type of solution. Each pharmacist  I spoke with was careful to warn me that the medicine should not be placed in my checked luggage – thanks for the reminder.

By Sunday of this week I believed that it was hopeless and began exploring  the insanely expensive option of  buying the medicine out of pocket in the US. Early Monday morning it occurred to me that there was a small pharmacy downtown where I had yet to try, it was a long shot, but worth the effort. I took the Jerusalem light rail which dropped me off a block away from the pharmacy. On any other day, in any other week, this distance would not have been a big deal, but as Benji Lovitt describes, we in Israel are experiencing Geshempocalypse! I arrived soaked and the pharmacist politely requested that I leave my drenched umbrella in the bucket by the door.  I was wet and I was desperate. I asked  my question and prepared myself for a perplexed gaze and firm answer that there is no such thing available in Israel.  Instead, she pulled out this:

wpid-1357550978370.jpg

“Great, I’ll take two.”

Israel

Props to Israel

I moved to Israel nearly ten years ago and it was a news item.The article is not entirely accurate. My first trip to Israel was after 10th grade and as part of a trip run by Young Judaea not Akiba. I went to college at both Columbia University and The Jewish Theological Seminary. My father’s name is spelled with only one ‘l’ and with an ‘a’ not ‘e’.  In any case, it is more or less accurate. It seems that a decade ago I was most concerned with missing the US and my family and friends:

“I’m sad to leave my family,” Appel said. “But my hope is that I will have created a home there, a sense of community and family, and that I will be making a difference in Israeli society.”

Today most of what I had hoped for has come to fruition. My brother and his family now live in Israel, I work in education, I met a charming fellow who became my life partner and I have made some wonderful and deep friendships. As for Israeli society, that is the topic of another blog by someone who is far more gifted  and brave than I.

Perhaps the greatest testament to my acculturation to Israeli society is that I have  developed a love-hate relationship with this country. It annoys me to no end that Israelis are incapable of waiting patiently  for their turn in a line – it is for this reason that I do all my grocery shopping online – or that nothing is ever anyone’s fault. I find myself disappointed by many of the realities in this country when I consider all of its potential (a sentiment often expressed by my teachers in high school about me!) Ten years later, I remain here, because this place is my home and because I hang onto optimism about the future – or at least I try.

Despite my rant, Israel deserves some serious props when it comes to the issue of infertility treatment. This is not to say that it is perfect but I have had a very good experience so far. To begin with the National Health Insurance Law offers its female citizens who are 51 and younger coverage for infertility treatment for two successful pregnancies. This is true regardless of a woman’s marital status, although I am fairly certain that some clinics will only perform IVF on couples who are legally married (but I could be wrong). Tommy and I did have to provide a copy of our marriage license before we could start IVF. There are support organizations for single and even religious women who wish to become mothers without a partner. The laws are also quite progressive when it comes to same sex couples. There is even fertility tourism to Israel.

Female Israeli citizens receive their coverage and treatment through the health insurance provider that they choose but the companies are more or less the same.  Everyone knows that these treatments can be quite costly in most parts of the world, which is why it is remarkable that in Israel citizens receive these treatments at reasonable prices. For example, a drug that would cost me $300+ for one injection in the US, comes to 80 Shekel (about $20) with the coverage that I receive.  In the US coverage varies according to state and that seems arbitrary to me. I can only imagine how much more difficult this process would be if trying to get pregnant were to become a financial strain.

Beyond the policies and finances of it all, my encounter with the nurses and doctors who deal with infertility has been comforting and encouraging. There is sensitivity to the process and the emotions that it involves, as well as a willingness to go the extra mile  for us and our care. Mostly, it is comforting that every conversation ends with the words, “good luck!” I feel that they are helping and supporting us in achieving our goal. Throughout this process a kind and positive attitude has made all the difference.

Disease

Houston, We Have a Problem

It has been awhile since my last post; it turns out that I have a difficult time writing about infertility when my in-laws are in town. Who knew?

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The first time that I was told that I might have difficulty getting pregnant was in 2010, the moment itself is actually etched into my memory. Right before I moved from Haifa back to Jerusalem, I am sorry to say, that I paid another visit to Dr. Google – I know, I have no excuse.

I told Dr. Google that it would be my last visit as I was moving to Jerusalem and would be getting married at the end of November. Mazal Tov! I could tell that he was genuinely happy for me. He asked me how old I was and told me that at 32 I had no reason to be concerned about trying to get pregnant. “It’s a wonderful age,” I believe were his exact words. We talked about the vitamins that I should start taking a few months before we tried to conceive. There was a lighthearted air in the room.

Then he started to review my electronic medical records which included his own notes.

His tone changed and his face appeared concerned.

“Eh, you have ovarian cysts,” he says.

At this point I am thinking, “yeah, we have been through this for the past two years; it’s all in the file that YOU wrote!”

Without any warning or much explanation – that is pretty much par for the course with this guy – he tells me that I should have the cysts surgically removed and that he can take them out next week.

WHAT?! Okay, next week, you want me to cancel everything and have surgery at the drop of the hat? There were many things that I had planned for the upcoming week: I was going to finish my job in Haifa, move to Jerusalem, start a new job, oh and yeah my parents and in-laws to be were arriving so that we could finalize the plans for the wedding. Why not just add a surgery in to make the week complete? I was starting to feel pretty overwhelmed by the conversation. I told Dr. Google that I would consider his advice and get back to him.

I walked home considering the option. How pressing was this? What about a second or third opinion? Did I really want Dr. Google to be my surgeon? The more I thought about it, the more it was clear to me that I needed to learn more about the situation before considering this surgery.

I also realized some important things that are crucial and have changed my approach to dealing with infertility. Our doctors work as partners with us, they don’t dictate all decisions that are made. We all know that doctors can make mistakes, miss the whole picture and have conflicting opinions. The decisions regarding the treatments that we choose are mine and Tommy’s to make. We don’t ignore medical advice. Instead, we consider it as we make our decisions about how we want to proceed.

More importantly, I learned that infertility cannot trump all  the other aspects of my life – in most cases.  This is a part of what I am doing these days. Yes, I do move mountains to have tests and procedures done at specific times and places so that I can get pregnant. It is not, however, all consuming.

Sometimes the cysts have to wait, and wait they did.

Why I Am Blogging

Brave?

Since writing this blog’s first post  I have received quite a bit of feedback from my readers. One of the recurring things that I have heard is, “what you are doing is very brave.” Brave? not really, what is particularly brave about it? I am told that most people would want more privacy. Well,  my life is Mostly an open book.

People say that blogging about our infertility is brave because most couples who have to deal with this issue are ashamed or embarrassed. That never made sense to me, embarrassing is:

  1. Running away from the microphone in the middle of your speech at your Bat Mitzvah.
  2. Introducing a colleague, one with whom you have worked for over a year, by the wrong name.
  3. Modeling your underwear to everyone at the bus stop because your skirt falls off as you run to catch the bus.

Infertility does not belong on this list.

I understand people who are concerned with their privacy, but I have discovered many wonderful things in my willingness to share my/our experiences. Last week my mother, one of my avid readers, called me after she had learned more about endometriosis and asked relevant questions about my treatment. This was the first productive conversation that the two of us have had on the subject and for a mother and daughter that can mean a lot. A friend suggested I should no longer refer to myself as  the infertile half of the couple because it can lead to feelings of guilt or inadequacy. After all, she noted, it takes two. There are also those people who have read the blog and shared their own experiences. Knowing that other couples have been through this makes us feel less alone.

More than anything else, by sharing this experience  I am able to gather the strength I need to push through this challenge. The past year has not been easy, but knowing that people out there are rooting us on and hoping for the best makes it a bit easier. So with the support and encouragement of those people who care I become not brave, but strong.

Disease

Dr. Google

Let’s go back in time. It was June 2008, I had recently moved from Jerusalem to Haifa, and it was time for my visit to every female’s favorite doctor. I asked friends for recommendations and made an appointment.

Here is an excerpt of the conversation that transpired as part of the checkup:

Dr.: Do you have regular periods?

Me: Like clockwork.

Dr.: Are they painful?

Me: Not particularly.

Dr.: Based on my exam and your blood tests, I think that you have endometriosis. Take the pill and come back in six months.

Me: Endometri-WHAT? (well not exactly, I had heard of it before but did not know much and certainly had some questions).

Dr.: You should Google it to find out more.

Did my Doctor tell me to Google my condition for more information? Google, a hypochondriac’s playground! For kicks, let’s try Googling the following search term: “pain in pinky.”  There you have it, arthritis – who knew that medicine was this simple?! My doctor could have suggested a particular site (in 2011 a new organization was founded that helps woman with this condition).

Maybe he thought that I would not understand his explanation in Hebrew; though we had been doing fine up until this point. Perhaps, he felt that taking the time to properly explain the disease would have put him further behind schedule – I played many games of hearts as I patiently waited for my appointment.

I wish I could tell you that I gave this doctor a piece of my mind and told him that I deserved just a bit more of his time and certainly better care. Of course that would be a lie, but in all future references in this blog – yes I continued to see him- he will be known as “Dr. Google.”

Unsure about the medical advice I had just received, I spoke to a friend. Luckily, she had a copy of  the book Our Bodies Ourselves (it’s not just for prepubescent females anymore). Taking the pill and monitoring the situation seems to have been just about right.

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While I wrote this post a couple of days ago, tonight I cannot help but express my sorrow about Friday’s events in Connecticut.  It goes without saying that as I am trying to create a new life, the tragic and meaningless death of so many people is heartbreaking.